

Ok we saw the pediatric rehab doctor this morning. She thinks that Emily's eating issues are at least partially due to her recessed chin, so we will be visiting the cranial/facial doctor in the near future for his opinion on surgery to move her jaw. This doctor feels that Emily should be able to eat pureed food without a possibility of the food going into her airways. That is important because we obviously do not live on a liquid diet, it just is the most caloric right now (Emily weighed 15 lb 14 oz at yesterday's weight check, she is growing like a weed). The doctor also said that most likely something didn't develop quite right in utero (or developed slowly--something about bronchial arches). I guess the bottom line is that this will not last forever, age and a possible surgery to move her jaw will fix the problems with the liquids. In the meantime she will have feeding/speech therapy and probably some occupational therapy as a precaution.
Now the concern is with her surgery and anesthesia, because of the position of her tongue and chin they may have difficulty getting a breathing tube in, so we have to consult a pediatric anesthesiologist. Unfortunately surgery may have to get rescheduled to Children's Memorial. At this point I just want to get the thing done. Every day is a new story, I will keep you posted.
Well, thank goodness for this nice weather, we sure needed a break.
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